Dispelling Five Myths About Non-Epileptic Seizures

Non-epileptic seizures (also known as psychogenic non-epileptic seizures, functional seizures, or dissociative seizures) are a complex and often misunderstood medical condition. Unlike epileptic seizures, non-epileptic seizures (NES) are not caused by abnormal epileptiform activity in the brain but can be better understood through biopsychosocial framework as a brain network disorder. Unfortunately, misconceptions and myths about non-epileptic seizures persist, contributing to the stigma and misunderstanding which can make this condition so difficult to live alongside. In this blog post, we aim to dispel these myths and shed light on the reality of living with NES.

Myth 1: Non-Epileptic Seizures Are Faked

One of the most damaging myths surrounding is the belief that individuals experiencing these seizures are faking them for attention or personal gain. In reality, these seizures are not voluntary actions; they are involuntary and can be profoundly distressing for the individuals experiencing them. These seizures are very real and can have a huge impact on the lives of those who experience them.

Myth 2: Non-Epileptic Seizures Are Rare

While non-epileptic seizures may not be as well-known as epileptic seizures, they are not rare. In fact, they are more common than many people realize. NES can affect individuals of all ages and backgrounds, and it's estimated that they account for around 10% of visits to 'first seizure' clinics and up to 30% of referrals to specialist epilepsy centres. Raising awareness about NES is essential to ensure that individuals receive appropriate support and understanding.

Myth 3: Non-Epileptic Seizures Are All the Same

Non-epileptic seizures can manifest in various forms, and not all NES episodes look alike. Some individuals may experience convulsive movements, while others may have episodes characterized by loss of consciousness or alterations in sensation. The diversity of symptoms highlights the complexity of NES and underscores the importance of individualized diagnosis and treatment.

Myth 4: Non-Epileptic Seizures Are a Result of Weakness

NES are not a sign of weakness or an attempt to avoid responsibility. Living with these seizures is often associated with underlying emotional or psychological distress, such as trauma, anxiety, or depression. Treating NES can involve addressing these mental health factors, which takes both courage and commitment.

Myth 5: Non-Epileptic Seizures Cannot Be Treated

Contrary to this myth, non-epileptic seizures can be treated and managed effectively. The key to successful treatment lies in addressing the factors contributing to the network disturbance which leads to seizures. Tailored psychoeducation, cognitive-behavioral therapy (CBT), other forms of psychotherapy, and sometimes medication can all help individuals reduce their seizures and their negatives impact, and improve their overall mental well-being. At Brain in Mind, we offer a comprehensive service enabling you to better understand your seizures and take back control of your life.

Conclusion

Non-epileptic seizures are a complex medical condition with unique challenges. Dispelling the myths and misconceptions surrounding NES is essential for fostering understanding, empathy, and proper support for individuals living with this condition. By breaking down these myths, we can encourage open dialogue, reduce stigma, and ensure that those affected by non-epileptic seizures receive the care and compassion they deserve.

Author Bio:

Dr Emily Shah is a Clinical Psychologist specialising in Neuropsychology. She works in the NHS and in private practice, offering in-person appointments in North-West England and online consultations across the UK.